There are references to the Well Being Project in this list of research
papers found on the MIMH site.  The list was assembled by Jean Campbell.
The MIMH site address is http://www.missouri.edu/~mimhmj/index.html#toc.
The web address for this list is http://www.missouri.edu/~mimhmj/Read.html.
 
 
 
MENTAL HEALTH
CONSUMER READINGS
 
 
 
Below are some references to articles written by mental health consumers or
with the collaboration of mental health consumers. This bibliography is not
comprehensive. If you know of articles written by consumers that are not
included, please send the references to this web site for inclusion. If you
wish to have a copy of one of these articles and cannot obtain it, please
contact Jean Campbell, Ph.D. at MIMH.
 
 
 
 
 
•Beale, V., and T. Lambric. 1995. The recovery concept: Implementation in
the mental health system. A Report by the Community Program Advisory
Committee, Columbus, OH: Ohio Department of Mental Health.
 
•Belcher, L., and T. Johnson. 1996. Consumer satisfaction surveys in West
Virginia. Paper presented at the National Conference on Mental Health
Statistics, Washington, DC: Center for Mental Health Services.
 
•Blanch, A., D. Fisher, W. Tucker, D. Walsh, and J. Chassman. 1993.
Consumer-practitioners and psychiatrists share insights about recovery and
coping. Disability Studies Quarterly 13(2): 17-20.
 
•Blaska, B. (1991). What it is like to be treated like a CMI. Schizophrenia
Bulletin 17(1): 173-176.
 
•Campbell, J. and R. Schraiber, R. 1989. In pursuit of wellness: The Well
Being Project, Sacramento, CA: California Department of Mental Health.
 
•Campbell, J., R. Ralph, and R. Glover, R. 1993. From lab rat to
Researcher: The history, models, and policy implications of
consumer/survivor involvement in research. Proceedings: Fourth Annual
Conference on State Mental Health Agency Services Research and Program
Evaluation, Alexandria, VA: NASMHPD Research Institute, Inc.
 
•Campbell, J. (1994). Values and the Generation of Outcome Measurements.
Outcome Issues in a Managed Care Environment. Report of the Ninth Annual
WICHE Decision Support Conference. San Francisco, CA.
 
•Campbell, J and J. R. Johnson. (1995). Struggling to reach common ground.
Behavioral Healthcare Tomorrow 4(3): 40, 45-46.
 
•Campbell, J. (1996). Toward collaborative mental health outcomes systems.
New Directions in Mental Health 71, San Francisco, CA: Jossey-Bass
Publishers, 69-78.
 
•Campbell, J. (1996). Who owns the data? Protecting privacy by sharing
openly. Behavioral Healthcare Tomorrow 5(6), 49-51.
 
•Campbell, J. and C. Kaufmann. (1997). Equality and difference in the ADA:
Unintended consequences for employment of people with mental disabilities.
In (Eds.) Bonnie, R. and J. Monahan. Mental Disorder, Work Disability, and
the Law. University of Chicago Press: Chicago, Il., 221-239.
 
•Chamberlin, J. (1978). On our own: Patient-controlled alternative to the
mental health system. New York: Hawthorne Books.
 
•Chamberlin, J. (1995). Rehabilitating ourselves: The psychiatric survivor
movement. International Journal of Mental Health 24(1), 39-46.
 
•Caras. S. (1994). One more label. Hospital and Community Psychiatry 45(3):
56-59.
 
•Carpinello, S., E. Knight, and L. Jatulis. (1992). A study of the meaning
of self-help, self-help group processes, and outcomes. Proceedings: Third
Annual Conference on State Mental Health Agency Services Research and
Program Evaluation, Alexandria, VA: NASMHPD Research Institute.
 
•Colom, E. (1981). Reaction of an Angry Consumer. Community Mental Health
Journal 17(1).
 
•Collaborative Support Programs of New Jersey (1991). Consumer housing
preference results and executive summary, Freehold, NJ.
 
•The Consumer/Survivor Mental Health Research and Policy Work Group (1992).
Reports 1, 2, 3., Fort Lauderdale, FL: The Well-Being Programs, Inc.
 
•Deegan, P. 1996. Recovery as a journey of the heart. Psychiatric
Rehabilitation Journal 9(3): 91-97.
 
•French, Sally. (1992) Researching disability: the way forward. Disability
and Rehabilitation 14(4).
 
•Fisher, D. 1994. Health care reform based on an empowerment model of
recovery by people with psychiatric disabilities. Hospital and Community
Psychiatry 45(9): 913-915.
 
•Fricks, L. 1995. Georgia evaluation and satisfaction team (GEST) handbook,
Atlanta, GA: Georgia Division of Mental Health, Mental Retardation and
Substance Abuse.
 
•Johnson, J. R. 1996. Critical missing ingredients: The expertise and
valued roles of people with psychiatric disabilities. Dialogue on Outcomes,
Arlington, VA: National Alliance for the Mentally Ill.
 
•Kaufmann, C., Ward-Colasante, C., Farmer, J. (1993). Development and
evaluation of drop-in centers operated by mental health consumers. Hospital
and Community Psychiatry 44(7), 675-678.
 
•Leete, E. 1988. A consumer perspective on psychosocial treatment.
Psychosocial Rehabilitation Journal 12(2): 45-52.
 
•Leff, H., J. Campbell, C. Gagne, and L. Woocher. In press. Evaluating peer
providers. In Consumers as providers in psychiatric rehabilitation: Models,
applications, and first person accounts, edited by C. Mowbray, D. Moxley,
C. Jasper, and L. Howell, Columbia, MD.: International Association of
Psychosocial Rehabilitative Services.
 
•Loder, A., and R. Glover. 1992. New frontiers: Pioneer Dialogue between
consumers/survivors and commissioners. MHSIP Updates, Washington, DC:
Center for Mental Health Services.
 
•Lovejoy, M. (1984). Recovery from schizophrenia: a personal odyssey.
Hospital and Community Psychiatry 35(8): 809-812.
 
•Mental Health Weekly. 1996. CMHS releases consumer report card for
field-testing. 6(19):1-2.
 
•Mental Health Report. 1996. TA Center offers free consumer consultations.
20(7):57.
 
•Midgley, J., S. Gilliland, S. Rose, M. Livermore, B. Beckstein, and R.
Lemoine. 1994. Initial development of a consumer-centered outcome
monitoring system for mental health services to adults with severe mental
illness. Report to the Louisiana Office of Mental Health, Confident, Inc.,
Baton Rouge, LA: Louisiana State University.
 
•Millet, K. (1990). The Loony-Bin Trip. Simon and Schuster: New York, NY.
 
•Peterson, R (1978). What are the needs of chronic mental patients? In J.
Talbott (ed.) The Chronic Mental Patient: Problems, Solutions and
Recommendations for a Public Policy. American Psychiatric Association,
Washington, DC. Pp39-49.
 
•Ralph, R. and J. Campbell. 1995. Using a consumer developed
housing/supports preference survey as a continuous outcome survey.
Proceedings: Fifth Annual Conference on State Mental Health Agency Services
Research and Program Evaluation, Alexandria, VA: NASMHPD Research
Institute, Inc.
 
•Ralph, R., T. Lambric, and R. Steele. 1996. Recovery issues in a consumer
developed evaluation of the mental health system. Proceedings: Sixth Annual
Conference on State Mental Health Agency Services Research and Program
Evaluation, Alexandria, VA: NASMHPD Research Institute, Inc.
 
•Ridgway, P. 1988. The voice of consumers in mental health systems: A call
for change, South Burlington, Vermont: Center for Community Change Through
Housing and Support.
 
•Scott, A. 1993. Consumers/Survivors reform the system, bringing a ‘human
face’ to research. Resources. 5(1): 3-6.
 
•Sommer, R. and H. Osmond. (1983). A bibliography of mental patients'
autobiographies, 1960-1982. American Journal of Psychiatry 140(8):
1051-1054.
 
•Susko, M. (Ed). 1991. Cry of the invisible: writings from the homeless and
survivors of psychiatric hospitals, Baltimore, MD: Conservatory Press.
 
•Tanzman, B. 1993. An overview of mental health consumers’ preferences for
housing and support services. Hospital and Community Psychiatry 44(5):
450-455.
 
•Trochim, W., J. Dumont, and J. Campbell, 1993. A report for the state
mental health agency profiling system: Mapping mental health outcomes from
the perspective of consumers/survivors. Technical Report Series.
Alexandria, VA: NASMHPD Research Institute, Inc.
 
•Virginia Mental Health Consumers Association. 1992. Commissioners guidance
questionnaire survey results, Richmond, VA: Virginia Department of Mental
Health, Mental Retardation and Substance Abuse Services.
 
•Wilson, S. F., Mahler, J. & Tanzman, B. (1990). A technical assistance
report on consumer and ex-patient roles in supported housing services.
Monograph Series on Housing and Rehabilitation in Mental Health.
Burlington, Vermont: Center for Community Change through Housing and
Support.
 
•Zinman, S., Harp, H. and Budd, S. (1987). Reaching Across: Mental Health
Clients Helping Each Other. Riverside, CA: California Network of Mental
Health Clients.